T is for .....

Target met
I was so happy to celebrate my grandson's 1st birthday yesterday. When I was diagnosed in September 2010 I didn't think I would be around to see my darling Ethan at all. So this really was a brilliant day for me.

He enjoyed opening pressies, going to a farm and eating birthday cake.
Love you lots little man - here's to us both meeting more targets together along with your beautiful little cousin Lilah. . NanaTess xx

Support

 

 I had a lovely phone call last night from my son in Canada to say he had booked air tickets for him, my daughter-in-law and lovely granddaughter to come to the UK for Christmas. It seems a bit more real now and something to keep me focussed to the future.

This got me thinking about my wonderful family and friends who have tirelessly supported me over the last year. How hard it must be for them too. Keeping up with their jolly chat and jokes and trying to be ‘normal’ when maybe they are feeling so sad and broken inside too.  My husband Alan has become my full-time carer so his life now totally revolves around me and my needs – it is so unfair. We are all in need of support from someone.

I often wonder how people cope if they don’t have a loving support network around them. This is why self-help and support groups are so important. 

Macmillan Cancer Support

Cancer  support groups

Support groups

I have found friendship and understanding on Facebook too with other Mesowarriors. It is often good to have such a group to ask about things that you don’t necessarily want to ask those close to you. They are not medical professionals  but just ordinary people who once had ordinary lives that have now been turned upside down by this cancer. They do not judge and are there for anyone needing help or support. 

For others counselling is a good way to talk through issues that are important to you. Alan & I had one counselling session when I was first diagnosed – to be honest I was so shell-shocked I cannot remember much about it. But for many it is a life line.

Counselling

So I hope anyone in need has someone they can talk to or if not then they know where to find help.

Hope the links  help. Tess x

Meso and Me ( a carers blog)

‘It is not enough to help the feeble up, but to support him after.’

Moving targets, a shopping list and a joke

I had an appointment with my consultant yesterday. The cancer is rearing its ugly head once more so I have to make a few changes to my targets. Some will have to be postponed, others brought forward. I will be starting a new chemo regime in the next week or two so I need to get geared up for that. Chemo is crap but the alternative is worse! This time I am being prescribed Vinorelbine and have been told it is better tolerated than the cisplatin group of drugs that I had first time round. I am hoping this is true but will let you know. 

In addition I am being referred to Maidstone hospital to see if I am a suitable candidate for a drug trial that is being researched there. 

In preparation I am making a long shopping list of foods to buy based on my previous chemo experience – hoping this will also help my personal chef as it will stop him tearing his hair out on the days when I refuse food. Those who know Alan may smile (or even laugh) at that as he is somewhat hirsutely challenged!  So on my list will include:

Ice cream (Haagen Dazs or Ben & Jerrys)

Tinned tomatoes

Heinz baked beans

Ambrosia creamed rice

Tinned tuna

Streaky bacon

Innocent fruit smoothies

Tins of CocaCola

Mixed nuts and raisins

Creme caramels

Chocolate mousse

Not many of these items are part of our usual shopping but needs must and the idea is to get calories in to me in a way I can tolerate.

So the holiday somewhere warm planned for October/November will now be postponed until February. I will add in a few days away in UK or France before the chemo starts. I will also add in a long weekend to London early in December.

Today I will leave you with a joke – courtesy of my very good friend Raymond who has sent me a joke-a-day since my diagnosis in September 2010. Any groans are therefore not my fault!

A turkey was chatting with a bull.

'I would love to be able to get to the top of that tree' sighed the turkey, 'but I haven't got the energy.'
'Well, why don't you nibble on some of my droppings?' replied the bull. They're packed with nutrients.'

The turkey pecked at a lump of dung, and found it actually gave him enough strength to reach the lowest branch of the tree.

The next day, after eating some more dung, he reached the second branch.

Finally after a fourth night, the turkey was proudly perched at the top of the tree.

He was promptly spotted by a farmer, who shot him out of the tree.

Moral of the story:
Bull Sh*t might get you to the top, but it won't keep you there..

My thanks also to friend and fellow warrior Mavis (who is already accepted for this trial) for the web links. Good luck Mavis.

Tess x

Use It or Lose It

None of us need telling how important exercise is whether you are able bodied or not.

The benefits of regular exercise are well documented. However, even with all this knowledge I have found exercising quite difficult. During my chemotherapy regime I lost a lot of weight due in part to the nausea, loss of appetite and fatigue. In my opinion I was almost skeletal in appearance which zapped my confidence no end. However due the culinary expertise of my wonderful husband I did get my appetite back and regained some weight. The problem now is the weight gain is mainly fat and flab and not muscle. I did try to get some advice post-chemo from my hospital and supportive therapy team about getting some kind of physiotherapy – all I wanted was someone to give me a few pointers in terms of exercise to strengthen my muscles. Physios are there in the hospitals and do an amazing job to get people moving again after surgery or long term bed confinement but I could not get any help in this area. I do not have the confidence or stamina to attend regular ‘keep fit’ classes. I do try and walk as much as possible – living by the seaside I do have the benefit of a flat prom. I use a pedometer just to keep myself on target. I am able to go up and down stairs at home without getting breathless but walking up inclines are difficult.

At the Mesothelioma UK day one of speakers was Julie Robinson who gave us taster of her ‘Move It or Lose It’  DVDs. Great fun and something I could do. I have just purchased these.

Physical activity during and after cancer

Move It or Lose It

Have been sat here too long now and need to get moving! Tess x

A school is an institution designed for the teaching of students (or "pupils") under the direction of teachers. Most countries have systems of formal education, ...

You certainly would expect to go there and return home safely wouldn't you?

Please take a look at this short video.

If you have any connection with schools in whatever capacity or know someone who has here are some questions you may like to get answers to:

Ask your school

·        Ask for asbestos Survey, Register and Management Plan

·        Is asbestos Vulnerable to children?

·        Is the school a System built school?

·        Have columns, walls, skirting and ceilings been Sealed?

·        Have all staff been Trained

·        What action following an asbestos Incident?

·        Are staff and parents always Informed?

·        Will asbestos be Progressively Removed?

Lobby your MP:

·        Openness

·        Environmental level for schools

·        Progressive removal

Look at this link to see the reasons behind these questions.

Thank you to Michael Lees for letting me use this information which is from one of the slides he presented last Saturday.  See MesotheliomaUK

Tess x

Uncertainty continues in fate of Quebec asbestos mine Provided by The Canadian Press

A bit of good news - one more to go.

Posted on Mon, Oct 3, 2011, 12:48 pm by Canadian Press

QUEBEC – The uncertainty surrounding a project to save one of Canada’s last asbestos mines will last a little longer.
The Quebec government had been set to decide last weekend whether to approve a $58-million loan guarantee for the Jeffrey Mine.
The deadline has already been pushed back several times and now the government says it hopes to have the matter resolved before the Christmas holidays.
The issue is a controversial one, with critics accusing the asbestos industry of causing cancer deaths in the poor countries where Canada exports the substance.
But defenders insist the product can be handled safely.
Meanwhile, the only other remaining asbestos mine in Canada announced its shutdown over the weekend.
With the mine mostly tapped out, production is being suspended at Lac d’amiante of Thetford Mines, Que., and 350 workers will be without jobs, unless mine officials can figure out how to get at deposits beneath an old highway.
(Quebec Le Soleil)

Tess x

Yeah! Another target met.

This weekend I was able to travel to Belgium for my cousin’s 70^th birthday celebration. This was one of my targets that I posted about in my first blog entry. I really enjoyed myself (even if the marquee was freezing cold!). We stayed in a hotel in Ninove which is between Ghent and Brussels and travelled via Eurotunnel. I really do wish they could sort out the horrendous queues at the border control at Calais. It was great to meet up with people I hadn’t seen for a few years and I shared a good few laughs and reminiscences. I came away feeling buoyed up and ready to face what could be a potentially stressful week. I seem to be in a better place emotionally now and when leaving the party I did not wonder if I was actually saying good-bye to people for the last time. This is a big and positive step forward for me. So let’s see what changes this week will bring.

Having met one target I am now setting another – to take a short holiday somewhere warm for my birthday – end of October. I have a few places in mind but will need to wait until after my next assessment to do any booking. For most people, travel insurance is a fairly straightforward part of booking a trip. But for those affected by cancer, getting cover can prove extremely difficult, even if they have been free of cancer for a number of years. So a terminal diagnosis can be a nightmare insurance wise.  Since my diagnosis I have travelled to France a few times without additional ‘pre-existing medical condition’ cover. I travelled to Italy in May when I was only 2 months out of chemotherapy and the insurance was astronomical in fact more than the holiday! My recent trip to Canada for a longer period of time was far less on insurance because I had been out of chemo for 6 months and a letter from my consultant stated that in her opinion I would live for 6 months after the trip! I like to think this was an underestimate! I have pasted a few links which may be useful if you are planning a trip. Now where did I put those holiday brochures?

Thanks for popping by today. Tess x

Travel Insurance

Travel Insurance

Travel and cancer