Wednesday, 9 October 2013

Time to set more targets



The weeks seem to fly by now. We have been getting out and about since my last posting.
My oldest friend Janice and husband Tony were down in London for a long weekend from their home in Yorkshire so they hopped on a train and met up with us in Canterbury. We had a good old chin wag over a drink in The Foundry and then a good lunch in The Olive Grove. I have known Janice since 1961 when we started secondary school together. I remember our teenage years clubbing in Klooks Kleek in Hampstead - now we are comparing photos of our grandchildren!

Another outing to Canterbury – this time to the Food and Drink Festival. It was so busy with lots of stalls selling their produce – most of it Kent produced or companies that have businesses in Kent. We came home loaded with cheeses, quince jelly, a variety of apple juices, meat puddings, pork pie, and pasties. It is great to be able to buy fresh produce. We had lunch in the newly opened Quex Barn restaurant which was lovely. We are very familiar with their other restaurant in Birchington so we were eager to try the new one.

Last weekend we were up in Leicester. The main reason for our visit was to attend the 8th Mesothelioma Patient and Carers conference. We arrived early Friday afternoon so were able to do a bit of sight-seeing. The clock tower and cathedral were worth a visit. I was impressed with the ‘flower’ arrangements in the cathedral – presumably done for a harvest service. 
I spy a cabbage

I don't think Alan's carrots would look quite so attractive!
We had a quick visit round the Richard III exhibition and found that very interesting. We were amused at some of the information displayed ‘Who was Richard III?’ ‘ he was called Richard III  because there were two previous Kings of England called Richard. Queen Elizabeth II is so called because there was a Queen Elizabeth before her! We have heard that they are dumbing down the history syllabus in schools but....!. Another fact which Alan took great delight in telling me was that after Richard was killed one of the ‘insult’ injuries he had given to him was a dagger up the anus! Ouch!
We walked round the famous market where it seemed everything was ‘4 for a pound’. A little known fact is that Gary Lineker used to work in this market on his father’s stall. Secretly I think Alan thought he might be doing a shift!
No visit to Leicester would be complete without a visit to a Curry house. We went to ‘Chutney Ivy’s' after a visit to a local hostelry which brewed its own Hoskins beer – Alan’s verdict was ‘delicious’!
The conference on the Saturday was a little disappointing with regard to speakers and information given. Sadly for ‘old timers’ like myself there does not seem to be any new trials or treatments on the horizon. So we just have to keep on keeping on. It was great to meet up with fellow warrior Steve and his lovely wife Linda. Steve is doing well at the moment and enjoying life which is great.
Steve and I sharing a joke

I want to share a couple of photos of the grandies. Thomas the tank engine paid a visit to Tunbridge Wells much to Ethan’s delight. Cannot believe my little man is 3 next week!
Gaby, Ethan & Thomas
Tim & Anna & Lilah went to Niagara-on-the-Lake for a weekend break. This picture is of Lilah looking out of the hotel window at ‘the big wah wah ‘ (translation – the big shower).
Room with a view

I have an appointment with my oncologist on Friday to discuss my recent scan. Next week I have my flu jab and 3 teeth extracted and hopefully some news on if/when my chest drain can be removed.

As always my thoughts and prayers are for my fellow mesowarriors. For Ernie and Ian who are suffering at the moment, for Beccy who has just lost her dad,  for Lou who is still going through chemo, Jan who is coming to terms with her cancer progressing and having to manage a stomach drain, Mavis who is anxiously awaiting scan results and Steve who should be packing for a trip to Budapest right now – enjoy! To you all and all others suffering I send you my love. Tess x

Monday, 23 September 2013

The Good, The Bad and The Ugly




The Good
We have had Tim visit us from Toronto for 9 days. It has been great to spend time with him and catch up with his world. While he was with us we visited Canterbury where we met up with Berni & Norma, Reculver Towers where the cold wind did blow and our local hostelry and curry house! He also spent time down in Somerset for the stag ‘do’ and in London. The main reason for his whistlestop visit was to attend the wedding of his best friend last Saturday. Congratulations Cheynne and Donna may all your dreams come true. I was well enough to travel and join in the celebrations and I even had a boogie on the dance floor. (Somehow that sounds rude)! Target Met.
Here is a picture of me and Tim & Jon – I think I am shrinking! 
Tess and the Gully Boys!
Tim should be boarding his plane home as I write. Only a matter of weeks now till he returns for Christmas together with Anna and Lilah. Target Set.

The Bad
Oh my there is always something! One of my back teeth literally disintegrated 2 weeks ago. Straight off to the dentist and it turns out I have 2 more back teeth that have shattered under the gum so I need 3 extractions! The dentist said it was very common to see this in patients who have had multiple rounds of chemotherapy, it is called ‘accelerated decay’. I have ‘googled’ this and there is a lot written about it. I have booked to have the extractions done at the end of October – dentist would not do anything before then as I am not yet 3 months out of chemo. I also need to get the OK from my oncologist.  B****r!

Having had a CT scan last week to check up on Mr Nasty scanxiety is now setting in. We always prepare for the worst but hope for the best. A worrying few weeks now until we meet with the oncologist.

The Ugly
It amused me to read this. The grumpy-looking, gelatinous blobfish has won a public vote to become the official mascot of the Ugly Animal Preservation Society. This gives the fish the unofficial title of world's ugliest animal. 
Hi Gorgeous!

The society began as a science-themed comedy night and devised its mascot campaign to draw attention to "aesthetically challenged" threatened species.
The winner was announced at the British Science Festival in Newcastle.
The blobfish tops a list that includes the huge-nosed proboscis monkey, the similarly afflicted pig-nosed turtle, an amphibian affectionately known as a "scrotum frog" and pubic lice. Biologist and TV presenter Simon Watt, president of the Ugly Animal Preservation Society, said he hoped the campaign would draw attention to the threats facing these weird and wonderful creatures.

And the Beautiful  
Yes I am referring to my fellow Meso warriors. Lots of heartbreaking stories from those in pain and seeking treatment – why do terminally ill patients have to search for their own treatment? Why haven’t the medical bodies in the UK caught up with us yet? Why isn’t there more money to fund trials?  I think that ‘they’ hope this ugly disease will peak and then disappear as asbestos is now a banned substance here but - and it’s a big but the disease can be present for up to 40 years before it shows itself. My thoughts are with you all my friends, Jan, Lou, Mavis, Steve and many many more. Tess x

Sunday, 8 September 2013

Blue Skies.....

We have spent the last week in the Cotswolds with Jon, Gaby and Ethan. The weather was brilliant – blue skies every day. Alan took 180 photos but here are just 10 of them!





Taking a breather in Hidcote Gardens

Feeding the ducks at Bourton-on-the-Water
   


Cotswold Lavender fields
Hidcote Gardens

Lovely thatched cottage
Old Mill Lower Slaughter



Sudeley Castle
Having fun in the Cotswold Wild Life Park
Walking the Plank!



Pelicans feeding time at Birdland

Tess x

Thursday, 22 August 2013

Making hay ....



... while the sun shines.

It’s been a few weeks since I posted but we have been out and about and making the most of the good weather.

We had a very welcome visit from friends Vicki, Gareth and Harry. It is always good to catch up and exchange news. Vicki and I compared notes on our respective grandchildren – like many of us Vicki has become the doting grandma! We had a good lunch at Quex Barn followed by a short walk around the grounds. Harry will be delighted that Arsenal won a football match yesterday – I know Alan had a smile back on his face!

We celebrated my ‘much older’ brother’s birthday – somewhat belated but nevertheless very enjoyable. We went for lunch at The Beacon which has stunning views over the surrounding Kent countryside. The food was good, the weather great and all were in good spirits. Ethan managed to get more chocolate ice cream on his face and T-shirt than in his mouth but it was melting so quickly the poor little chap did not stand a chance.

We enjoyed another celebration last weekend for Sean’s graduation. This involved a trek north to Watford. It was great to catch up with Alan’s side of the family. The party was great fun and so good to see the youngsters enjoying themselves. So big congratulations to Sean on getting his degree – he now has an ology! Here are some pictures of the event. Remember Sean, never lose sight of your dreams, the world is waiting for people like you.

Kathy, Chris, Angie

Me and the handsome Sean!

Looking through the mirror! Gerry, Sean, Sue, Callum

Lovely Katie
Me and my shadow!
Michael looking very relaxed




proud mama Sue, Sean, proud papa Gerry
 We also caught up with Brian and Theresa (Alan’s brother & sister-in-law). We were so pleased to see them after a long time – life just gets in the way sometimes. Although they have both had their fair share of health issues it was good to see them both in good spirits and very chatty. It was lovely to see some wedding photos of Alan’s nephew Stephen and new wife Marie. Brian is another who will be pleased at Arsenal’s latest result!

On the health front I am doing OK at the minute. I feel I have recovered from the last regime of chemo and I continue to put on weight. I had an unscheduled visit to see my thoracic surgeon yesterday as I had a blockage in the chest drain. Chargenurse Gully was unable to sort it out. Although a fairly simple plumbing job he did not have the right tools! Anyway all was sorted very quickly and the Dr offered Alan a job in her clinic as he impressed her with his nursing skills! When I came out of the consulting room there to greet us were Mavis and Ray. It is always good to see them. Mavis is a friend, my mentor and a fellow mesowarrior. She is currently going through chemo and was in the hospital for routine blood tests – yes my social life now extends to hospital waiting rooms!

Always in my thoughts are my fellow mesowarriors. Some are going through really tough times at the moment. I send my love and support to them all.

Tess x

Tuesday, 16 July 2013

Happy Days


Well, cycle 6 of the chemo is now over and my oncologist is pleased with the positive response to this treatment. I am feeling good and the sun continues to shine. Happy days indeed. I have 2 more hospital appointments this week and then hope to be free for the rest of the summer. Fingers and toes crossed that things stay on an even keel.  Also my weight continues to increase. Tubby Tess is my new name!

We had Ethan here for the weekend – he is such fun now and he perfected the art of dunking biscuits in Nana’s tea without burning fingers or dropping biscuit. I taught him how to play ‘Snap!’ – I thought he was a bit too young to play for money so I will wait a little while longer for that. He also learnt how to hop! Gramps was delighted with his little helper when it came to digging up the spuds!
Digging up the tatties!


Ethan & Jon on Westbrook beach
Ethan catching bubbles




The Canadians are doing well.  We Skype weekly and Tim & Anna are very good at sending photos of the lovely Lilah.

Lovely Lilah having fun


Jon successfully completed the first of his 2 charity cycle rides. This one was in Annecy, and was the same route as stage 20 of the Tour De France (128k with lots of climbing). He made it in just over 9 hours with temperatures of 34 most of the way. Thankfully he avoided the ‘broom wagon’ by about 45 minutes. His next ride is nearer to home at the beginning of August. All money raised will go to Macmillan cancer Support.

Please take a peep at his charity page and support him if you are able.


We had a great day with friends Tony & Roz. It was good to catch up with all their news. They have chosen a great week to have a holiday in St Ives.

The Mesowarriors continue to fight their individual battles each day. Some have has good results from their treatment and some not so good. Together we help and support each other through the ups and downs of living with a terminal cancer. Carers are very much a part of our community too. Life can be so hard sometimes.

Tess x