Last Thursday’s visit to Maidstone went according to plan with the usual long delays of over an hour. My lovely nurse Jan was back from holiday so all was in order. Friday was another hospital visit – this time to St Barts in London. We had a good chat with doctor there and they are now going to communicate with the team at Maidstone. My next appointment at St Barts is at the end of May after my next scan has been done.
We stayed in London overnight. We met up with my brother & partner for a drink and a curry on Friday evening. Excellent food. It was good to see them again and chat about their recent holiday in Australia.
We came home on Saturday – no retail therapy this time as I was not feeling too good and rather breathless.
I had another visit to Maidstone Hospital on Tuesday for my 3 weekly review with the Dr in charge of the trial. Only 1 hour and 15 mins delay today. My blood pressure was sky high (I wonder why?) We had a chat and discussed my increasing breathlessness. I am also being referred to the MacMillan nurse team at my local hospice as I am now beginning to get more symptomatic. This will also be good for Alan to have a professional to give advice as and when needed. The Dr thought that things were on a fairly even keel at the moment. I will see him again in 3 weeks after my next scan. In his words ‘Keep Calm & Carry On’.
Today I had a Shiatsu massage at the supportive therapies unit in Canterbury. This was soooo relaxing I was almost dozing off zzzzzzzzzzzzzz. I enjoyed it so much I have booked another 2 sessions. Following this we went for lunch at Michael Caines restaurant at the Abode, Canterbury. We enjoyed their lunchtime ‘Amazing Graze Menu’. We popped into M&S to pick up a pizza for tea and then headed home – again my breathlessness prevented my usual shopping activities.
The grandies continue to keep us buoyed up. I (and I suspect Alan too) have been taking sneaky peeks of lovely Lilah at her Kinder College. She now has her bottom teeth and is attempting to stand unaided. What a little star she is. Gorgeous Ethan got his first ‘little ducklings’ swimming badge this week! He is the only one in his group of 8 who will jump in the pool from a standing position! Why does this worry me? I love you both.