Well definately not the news we wanted to hear so early in 2014. We had a meeting yesterday with my oncologist to get the results of my latest scan taken on 2/1/14. There is no easy way to say this but the news is bad. Mr Nasty is very active once more with much thickening to the pleura (lining of the lung). The cancer has now spread to my lymph glands in my neck and under my arm and there is new growth through the chest wall between ribs 10 & 11.! This is bad news. But we need to keep positive and although we are both still a bit shell shocked we always knew this would happen. We can never win the war against this awful cancer but having won a few battles over the last 3.5 years it has come as a bit of a shock.
So where do we go from here?
My oncologist, bless her really doesn't know what to suggest as she has limited experience of dealing with 'old timers' like myself and my dear friend Mavis. But her suggestions were:
1)Yet more chemotherapy:
Rechallenging with Carboplatin/alimta
Rechallenging with Vinoreline - I have said no to this as the side effects were so awful and it didn't work particularly well.
Try a different drug she mentioned (vaguely) Gemcitobine but she did not elaborate.
2)She knew of no trials suitable but I pointed out the new trials emerging at St Barts. She was going to email the team there to see what is going on. I will email them myself on Monday.
3)Have no further treatment and 'wait and see'. To me this sounds the same as giving up or perhaps they are different concepts??
So that's where we are at present. My onco will agree to whatever I suggest or so it seems but I will listen to the wise words of my son 'Fight the fucker Mum' (he learnt the bad language at the Catholic school he went to! ) Alan will support whatever choice I make.
Thank you all for your support.